Complementary medicine is used frequently in autism, …probably more so than conventional therapy! Research suggests that between 30 and 95% of children with autism receive some type of complementary therapy. Considering the lack of effective treatments for this condition, complementary approaches represent a popular option for many parents. Typically both physicians and patients have access to the same information and have similar questions as to their safety, effectiveness, and use.
Complementary medicine is evidence-based, meaning that it integrates clinical experience with recommendations for judicious use based on recommendations derived from available clinical and research reports. Complementary interventions are often used as primary treatment or in conjunction with conventional treatment. There are 2 main subgroups: 1) natural products like botanicals, minerals, vitamins and probiotics, and 2) mind and body practices like yoga and hypnotherapy.
Complementary medicine differs from alternative medicine in that the latter lacks sufficient evidence of efficacy and is therefore used as an optional treatment. During the last few years there has been an effort to merge the practice of complementary and alternative medicine into a single field. The convergence of these approaches into integrative medicine emphasizes a holistic, patient-focused approach to health care. For the purpose of our discussion, we now abbreviate the terms for complementary and alternative medicine as CAM.
The use of CAM therapy has been increasing within our society. At this very moment, approximately 1 in 3 adults and 1 in 10 children use some type of CAM therapy. People of all backgrounds use CAM; however, its use among adults is greater among women and those with higher education/incomes. This is specially so, if the patient has had a large number of visits to physicians during the proceeding years. In the US, African American and Hispanic families are the least likely to use CAM.
There are a number of reasons as to why people use CAM therapy. In some cases, these may include family beliefs and fear of adverse drug effects from conventional therapy (e.g., in the case of chemotherapy). Some interventions offer comfort and relaxation as patients receive satisfaction from the touch, talk and time offered by the therapist. For many parents of autistic individuals, CAM therapy fulfills a desire to improve the health of their children at a time when conventional options are few or nonexistent.
Unfortunately, most CAM research is cluttered by studies that have small sample size and can’t sustain definite conclusions. In autism, there is also a problem with confounding variables as patients usually receive multiple interventions. In addition, there is a publication bias that may color the interpretation of clinical trials that us complementary therapies. Indeed, negative studies are more likely to be published in well known journals, while positive studies are more likely to appear in foreign language journals. Also, CAM studies are usually centered around adults, with little information derived regarding their use in children.
Dietary supplements are possibly the most common CAM intervention in autism. According to the Dietary Supplements Health and Education Act of 1994, a dietary supplement is a product intended to enhance the diet. It may contain vitamins, minerals, herbs or amino acids. It is intended for ingestion and not used as a conventional food. The FDA can only demonstrate safety of a supplement after it reaches market and relies on voluntary reporting system to learn about possible side effects or problems with the product. Labeling can not include any claims to prevent, treat, or cure a specific disease, but it can make statements about the structure/function or general “well-being” of the body. When such statements are made, the FDA requires a further disclosure: “This statement has not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease”. The nutritional label must also include the name and quantity of each ingredient.
When discussing CAM treatment with parents I would like them to be the primary decision makers and to always keep in mind what is in the best interest of the child. The physician obligation is to maintain an open mind and be nonjudgmental. However, physicians need to be knowledgeable and to educate themselves about potential harms and benefits of complementary treatments. Basically, if it is safe and effective, physicians can recommend using CAM, especially in cases where a cure is not available with conventional therapies.
Casanova MF. Autism Updated: Symptoms, Treatments and Controversies. Amazon Publishing.
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That correct doctor. I start loosing trust in regular medicine when they try to make me believe there nothing more we can do for you. Maybe you can do that to a person not high educated but for a person that went to the university those kind of comment to a patient does not going to grow the trust on you as a provider. That make me look for alternative and thank god I get cure. And if I told you what I have you going to said the same answer I got from my doctor in a wrong way, like a general giving you an order. I suffer from Herpes 2 and the option in regular medicine is drink antiviral for life. That was not my best option. But alternative medicine give me several options that me as a chemist discard the one that look like scam as soon they said paid me 40$ to give you the answer. Today after 5 year of that experience I really believe that alternative medicine has more answers to our current problems than regular medicine studied with all those supported studies. There a lot of good information that has been block by the current media and also bulling the one that really work making people believe that are bad. When the real information is moving mouth to mouth is a moment to start listening what this person experience has to say. That how I get connected with Autism World. I was helping with my knowledge of chemistry to a mom that was unable to understood the chemistry behind the method she was using with his son, when a group of woman start bulling me for helping her. I know for your writing that you don’t believe in autism recoveries, but I do , because there a lot of disinformation and wrong diagnostic. The real autistic kid are a very low percent and all the other are created. The real one did not recovered because has a permanent damage in the brain. The other the one that have APGAR between 9 an 10 those has more chances to recover using alternative medicine. Thank you for all your job ,I’m not always agree with your opinion but I read it.
It is a pity that you do not mention hypnotherapy anymore. Of course, you would like to be an Hypnotherapist and Autistic. Do you know such clinical trials?
Unfortunately, I am not aware of any such trial. Thank you for your comment. Appreciate your interest in this matter.
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Estimado Dr Casanova el libro Autism Update:………es una necesidad real en español, gracias, no nos olvide.
Ese es el sueno mio. Quisiera poder traducirlo antes de que me ponga demasiado viejo. Gracias por el comentario.